WELCOME TO HOLLAND
I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……
When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”
“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”
But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.
The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”
And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.
But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.
c1987 by Emily Perl Kingsley. All rights reserved
April 21, 2008 at 8:07 pm
Hi Robin, John & Michelle (& Gramma too)….it is a beautiful thing to have such loving support from so many; I know it makes all the difference in the world!! The pictures of Emma here are just so, so beautiful, very touching and heartwarming; they capture both Emma’s and God’s Spirit!! You are carrying a heavy cross, but with your strong love and care, the hospital personnel, family members, friends, church, you are very blessed….I know you have been experiencing lots of fears and exhaustion, but as in the poem, “Footprints”, God is carrying you each along each step of this journey with Emma. I believe God has carried my disabled step-Grandson every inch of his journey, keeping him safe and pretty healthy, so as always, there is always lots to be thankful for. Your strength certainly helps little Emma to be strong too. Thank you so much for the updates on Emma and all the beautiful pictures. Blessings and much love to all of you…
July 3, 2009 at 5:37 pm
She’s beautiful. You are a very blessed Mama.