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	<title>Emma Kissock - Emma's Syndrome</title>
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		<title>Emma Kissock - Emma's Syndrome</title>
		<link>http://emmakissock.wordpress.com</link>
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		<title>Emma visits with Santa!</title>
		<link>http://emmakissock.wordpress.com/2009/12/23/emma-visits-with-santa/</link>
		<comments>http://emmakissock.wordpress.com/2009/12/23/emma-visits-with-santa/#comments</comments>
		<pubDate>Wed, 23 Dec 2009 15:23:25 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=488</guid>
		<description><![CDATA[
I&#8217;m not sure what she is telling Santa or what Santa is telling Emma, but Santa did say that he would say a prayer that she is home for Christmas this year.

Last week it was questionable if we were going to have Emma home for Christmas.  She caught some kind of stomach bug and wasn&#8217;t [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=488&subd=emmakissock&ref=&feed=1" />]]></description>
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			<media:title type="html">Emma and Santa Talking December 2009</media:title>
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		<title>Halloween pictures</title>
		<link>http://emmakissock.wordpress.com/2009/11/23/halloween-pictures/</link>
		<comments>http://emmakissock.wordpress.com/2009/11/23/halloween-pictures/#comments</comments>
		<pubDate>Tue, 24 Nov 2009 04:09:18 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=480</guid>
		<description><![CDATA[Emma as Piglet

       <img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=480&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>1</slash:comments>
	
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			<media:title type="html">Emma as Piglet</media:title>
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			<media:title type="html">Emma Halloween 2009</media:title>
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		<title>We have a diagnosis!</title>
		<link>http://emmakissock.wordpress.com/2009/11/23/we-have-a-diagnosis/</link>
		<comments>http://emmakissock.wordpress.com/2009/11/23/we-have-a-diagnosis/#comments</comments>
		<pubDate>Tue, 24 Nov 2009 02:53:11 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=477</guid>
		<description><![CDATA[While seeing the geneticist last Thursday, November 19, she had several other doctors come in to confirm what she suspected.  She told us that Emma has the Cornelia de Lange Syndrome.  Having a diagnosis isn&#8217;t going to change much of anything for us, except that it will be easier to fill out all the medical [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=477&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>3</slash:comments>
	
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		<title>Emma&#8217;s home and has all her teeth!</title>
		<link>http://emmakissock.wordpress.com/2009/11/02/emmas-home-and-has-all-her-teeth/</link>
		<comments>http://emmakissock.wordpress.com/2009/11/02/emmas-home-and-has-all-her-teeth/#comments</comments>
		<pubDate>Mon, 02 Nov 2009 19:12:42 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>
		<category><![CDATA[John]]></category>
		<category><![CDATA[Michelle]]></category>
		<category><![CDATA[Robin]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=474</guid>
		<description><![CDATA[On Thursday (Oct. 29th) Emma&#8217;s last top tooth came in.  On Friday, Oct. 30th, her last bottom tooth came in.  So she has all her teeth.  Of course, what was supposed to be the first teeth, were actually the last teeth to come in.  Again, Emma did it her own way!  On Friday, Robin said [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=474&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>0</slash:comments>
	
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		<title>Going home on Sunday!</title>
		<link>http://emmakissock.wordpress.com/2009/10/29/going-home-on-sunday/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/29/going-home-on-sunday/#comments</comments>
		<pubDate>Thu, 29 Oct 2009 17:39:55 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=471</guid>
		<description><![CDATA[The doctors have said that Emma can go home on Sunday (barring any set backs).  She is tolerating some of her feeds and they are gradually increasing them.  She may have to go home on the IV nutrition, but the doctor said that it probably wouldn&#8217;t be long that she would be on them.  They need [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=471&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>0</slash:comments>
	
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		<title>Improving some</title>
		<link>http://emmakissock.wordpress.com/2009/10/27/improving-some/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/27/improving-some/#comments</comments>
		<pubDate>Tue, 27 Oct 2009 20:49:06 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=469</guid>
		<description><![CDATA[Emma has started to tolerate her feeding (at times).  If her stomach is distended, then they hold the feeding and wait 3 hours to see where her stomach is at then.  She is at 85 ml.  Her normal is 170 ml.  So we are about half way there.  Some of the test results are back.  [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=469&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>1</slash:comments>
	
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		<title>Still not tolerating feeds.</title>
		<link>http://emmakissock.wordpress.com/2009/10/23/still-not-tolerating-feeds/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/23/still-not-tolerating-feeds/#comments</comments>
		<pubDate>Fri, 23 Oct 2009 18:34:19 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=467</guid>
		<description><![CDATA[Emma is still not tolerating her feeds.  Yesterday they put in a permanent type of IV line.  She made it through the surgery ok, but was fussy all night long.  They tried to feed her, but her stomach became distended again, so feeds were stopped.  I haven&#8217;t heard from Robin in awhile, but she said [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=467&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>0</slash:comments>
	
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		<title>Emma&#8217;s back in the hospital</title>
		<link>http://emmakissock.wordpress.com/2009/10/21/emmas-back-in-the-hospital-4/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/21/emmas-back-in-the-hospital-4/#comments</comments>
		<pubDate>Wed, 21 Oct 2009 22:03:25 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=465</guid>
		<description><![CDATA[Last night they admitted Emma again for feeding intolerance.  They are going to put in a central line tomorrow.  They are trying to give Emma pedialyte every hour, but she just continues to cry after they give it to her.  So we don&#8217;t have any solution in sight at the moment.  Just frustrated.  I&#8217;ll let [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=465&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>0</slash:comments>
	
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		<title>Extra help on hand!</title>
		<link>http://emmakissock.wordpress.com/2009/10/16/extra-help-on-hand/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/16/extra-help-on-hand/#comments</comments>
		<pubDate>Fri, 16 Oct 2009 18:36:06 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=463</guid>
		<description><![CDATA[Beginning today Emma will have a nurse at the house every day for about 8 hours.  They have authorized this to try to keep Emma out of the hospital and to try to catch things early and take steps to keep her at home.  This should also give Robin a few spare moments to spend [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=463&subd=emmakissock&ref=&feed=1" />]]></description>
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		<slash:comments>0</slash:comments>
	
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		<title>Emma&#8217;s Home and U of M Visit</title>
		<link>http://emmakissock.wordpress.com/2009/10/09/emmas-home-and-u-of-m-visit/</link>
		<comments>http://emmakissock.wordpress.com/2009/10/09/emmas-home-and-u-of-m-visit/#comments</comments>
		<pubDate>Fri, 09 Oct 2009 12:02:02 +0000</pubDate>
		<dc:creator>emmakissock</dc:creator>
				<category><![CDATA[Emma]]></category>
		<category><![CDATA[Grandma Carol]]></category>

		<guid isPermaLink="false">http://emmakissock.wordpress.com/?p=460</guid>
		<description><![CDATA[Emma was released from the hospital on Tuesday, October 6, about 5:30 p.m.  Michelle got bronchitis and we wanted to make sure it was ok to take Emma home.  On Wednesday, Emma had an appointment at the U of M with a gastroenterologist.  We were there over an hour and went over Emma&#8217;s medical history.  Robin [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=emmakissock.wordpress.com&blog=3518448&post=460&subd=emmakissock&ref=&feed=1" />]]></description>
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