Time for an update! Emma has been doing ok for the most part. She has had issues with reflux (gagging). We don’t know why because this isn’t supposed to happen when she has a nissan band on her stomach to keep everything down. She has had a milk study this week and that didn’t show anything. Next problem was on both Tuesday and Wednesday evenings when Emma’s central line became infiltrated when her TPN was running. On Wednesday afternoon they unclogged the line and everything seemed fine. But again on Wednesday evening the line was infiltrated again. So this sent Robin and the nurse to the ER to figure out what was going on. They were in the ER all night. Early in the morning, they unclogged the line again and got fluids running again. They admitted her for observation and to do a line study to see what was happening. So on Thursday morning, they did the line study. Of course it came back as normal. (So frustrating when things are not right at home, but then tests come back normal.) Emma stayed overnight in the hospital so that they could watch the line once her TPN was started. Of course, no problems overnight in the hospital. So, Emma will be going home soon. I guess, things have went well for so long that it is time for Emma to give us something different to deal with. Oh well, we have done it before – we can do it again! Emma will be starting preschool next week. She will be going 4 days a week Monday through Thursday in the mornings. (Big sister Michelle has started 9th grade at the high school). My oh my are my granddaughters growing up. Emma now weighs 32 pounds. She still goes to OT and PT. She seems to be progressing slowly.
Love to all,
Grandma Carol
